Nathan is a sweet innocent 14 year old boy. He is the older brother of Nicholas, who is 12, and P.J. who is 10. He is our son and we love him dearly. When he was 4 years old, he was diagnosed with a fatal degenerative neurological disease called Late Infantile Batten disease. This disease takes no mercy on its young victims. Nathan is currently completely blind and has regressed in skills that he had once mastered. Every day he struggles. The child who once ran and played like other children now requires constant care. Nathan's future will consist of seizures, loss of motor control, as well as loss of the ability to think and reason coherently. Nathan will end up bedridden and will require a feeding tube for nourishment. The average life expectancy for a child with Late Infantile Batten's Disease is twelve years of age. It breaks our hearts to see this wonderful boy struggle so much. In appearance he looks very normal and others cannot understand why he struggles. At this point we are desperately searching for a treatment for his conditions. We are willing to do anything or go anywhere to help our son.

We founded the Nathan's Battle Foundation to aid in the development of therapies for this deadly disease.  Through the foundations efforts we found a potential cure.  In late 2000, we initiated a formal project with Cornell University's Weill Medical College to develop this life saving treatment and initiate a clinical trial. 

On March 12, 2001, complete devastation overcomes the Milto family when test results from their youngest son, P.J., comeback positive for Late Infantile Batten disease. The Milto family is attempting to deal with the unbearable diagnosis of their youngest son. Nathan's Battle now becomes a WAR!!! We MUST win both the battle and the war. Two of our three children have this dreadful fatal disease.

The initial human clinical trial has completed!!!  In order for the trial to have begun the Nathan's Battle Foundation had to enter into a pledge agreement with Cornell University.  Unfortunately, we did not have the necessary funds to complete the clinical trial.  Completing the trial and moving to the next generation of therapies is critical to scientifically demonstrate and document the safety and benefit of the treatment.  No further treatments could be given or developed without fully funding the trial.  The pledge was a $2.1 million milestone driven pledge agreement.  NBF paid $176,876 per quarter. We ran out of money in 2007.  We still owe near $200,000 and need to raise the remaining funds.  Please help support these treatments.  Every little bit helps us get to our goal of saving lives.  We need the assistance of philanthropist and foundations that want to make a difference in saving children's lives and advancing science. You have the opportunity to make a difference in children's lives.  If you want to help do something that has immediate impact follow directions on the Targeting Potential Donors link.

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